It’s been so great to have Reece feeling better. Reece has been asking me to go outside a dozen times a day. The weather hasn’t been so pleasant, very windy and that causes her asthma to flare. So when we saw sunshine and clear skies we took advantage and spent some time outdoors. Reece likes to play with bubbles and she always wants to play with them but I don’t really like to in the house. So we took this day and played with bubbles. She is new to the “blowing” part and spent most of the time licking the wand, it was gross to me but she didn’t mind at all!
Reece still coughs everyday and sometimes in the night but we have seen a drastic change. She had her apt. with the pulmonologist this week and it went well. We spent 3 hours at the office, 90 min face to face with the Dr and had lots of test. She was tested for allergies and had none; she was tested for CF (cystic fibrosis) which was negative, huge relief. They also checked her sinuses for possible infections and they looked good. Our plan and diagnosis is Reactive airway disease/Asthma and to start her on Singulair/daily. She is still taking an inhaled steroid once a day. We are hopeful that things are going to improve for her and just try and keep her healthy. The few things we have narrowed down that cause her coughing fits: crying, laughing, dust, increased activity, cold drinks and sickness.
Reece has been super good with all that has gone on in the past 3 months. She has no idea what’s wrong or what we are doing, she won’t remember any of this and doesn’t understand what we are doing and that we are helping her. She has done exceptionally well with all the Dr’s and nurses examining her and testing her, giving her treatments and taking medication. I have been so blessed to have such a composed little girl throughout all this. We were told that most likely for the next few years this will be a routine for her and we won’t know if she will have asthma for the rest of her life until she is 5 years old. Our hope is she will grow out of this but I know she will be strong with whatever the outcome is.
Reece eating a lemon... my mouth waters every time i see this
one of T's favorite things to play with
best box of huggies i purchased!!
we actually had a few nice days and spent them outside playing with bubbles
T was so happy to be outside
1 comment:
Erin. I am so sorry that you are having such a rough year. 2012 has been sucking for us big time too! But I don't know how you have been doing this- so many sick babies all the time. I just reread your last post about all of Reese's hospital stays and the flu. There is nothing worse than having sick babies! Except maybe having sick babies while being sick yourself. But you did it and you are doing it and you are proving what a strong woman you are. You are doing hard things and you are getting through it and doing it so well. I'm so glad Reese didn't have CF and I'm going to add your family to my prayers. I'm sorry things have been so hard but you are doing such a good job. I hope your babies sleep okay for you tonight.
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